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	<title>Comments on: Ashley&#8217;s case and &#8220;I&#8217;d rather be dead.&#8221;</title>
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	<link>http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/</link>
	<description>Feminist, anti-racist, pro-fat, plus whatever else we feel like talking about.</description>
	<pubDate>Mon, 01 Dec 2008 20:15:24 +0000</pubDate>
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		<title>By: Suzanne</title>
		<link>http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225910</link>
		<dc:creator>Suzanne</dc:creator>
		<pubDate>Thu, 11 Jan 2007 18:47:02 +0000</pubDate>
		<guid isPermaLink="false">http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225910</guid>
		<description>For those who believe in the primacy of bodily integrity, are you also bothered when parents of conjoined twins decide to give them separation surgery?</description>
		<content:encoded><![CDATA[<p>For those who believe in the primacy of bodily integrity, are you also bothered when parents of conjoined twins decide to give them separation surgery?</p>
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		<title>By: Barbara</title>
		<link>http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225907</link>
		<dc:creator>Barbara</dc:creator>
		<pubDate>Thu, 11 Jan 2007 18:37:13 +0000</pubDate>
		<guid isPermaLink="false">http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225907</guid>
		<description>If cognition is the primary/only factor that someone uses to determine personhood, then it seems to me you would have to set the cognition bar pretty darned low to maintain anything approximating a humane society.   The other thing is, a standard of personhood is  not a "provable" proposition, and is inherently irresolvable except at the outer limits -- as in the case of brain death.  Whatever state short of brain death exists can be argued as sufficient cognition to qualify as personhood.   So to state that no one has proved your working definition of personhood wrong is beside the point.  It floors me that you think a three month old might not have sufficient cognition to be human -- by three months old a baby is smiling purposefully, in reaction to your smiles and in order to get you to smile.  Even within 24 hours a baby is noticeably reacting to the difference between his mother and other humans.   The other thing, and the thing that always gets to pro-life advocates, is that whether we like it or not, we view end of life determinations differently partly because of the notion of stasis -- Terri Schiavo's status could not improve, but a normal infant only becomes more and more cognizant until normal cognitive skills (whatever your definition of that is) are achieved.   I will say that I categorically reject any argument that would resolve Terry Schiavo's fate based on whether she was a person.  She was a person; the issue was whether it was required that she continue to be forcibly maintained via complicated feeding arrangements in a manner that she ostensibly would have rejected had her cognitive level allowed her to communicate her wishes.  I am pro-choice, but I am not going to have the tail wag the dog and come up with a theory of personhood that questions the personhood of newborns (or viable pre-borns) in order to quiet whatever ethical qualms I might have about abortion.</description>
		<content:encoded><![CDATA[<p>If cognition is the primary/only factor that someone uses to determine personhood, then it seems to me you would have to set the cognition bar pretty darned low to maintain anything approximating a humane society.   The other thing is, a standard of personhood is  not a &#8220;provable&#8221; proposition, and is inherently irresolvable except at the outer limits &#8212; as in the case of brain death.  Whatever state short of brain death exists can be argued as sufficient cognition to qualify as personhood.   So to state that no one has proved your working definition of personhood wrong is beside the point.  It floors me that you think a three month old might not have sufficient cognition to be human &#8212; by three months old a baby is smiling purposefully, in reaction to your smiles and in order to get you to smile.  Even within 24 hours a baby is noticeably reacting to the difference between his mother and other humans.   The other thing, and the thing that always gets to pro-life advocates, is that whether we like it or not, we view end of life determinations differently partly because of the notion of stasis &#8212; Terri Schiavo&#8217;s status could not improve, but a normal infant only becomes more and more cognizant until normal cognitive skills (whatever your definition of that is) are achieved.   I will say that I categorically reject any argument that would resolve Terry Schiavo&#8217;s fate based on whether she was a person.  She was a person; the issue was whether it was required that she continue to be forcibly maintained via complicated feeding arrangements in a manner that she ostensibly would have rejected had her cognitive level allowed her to communicate her wishes.  I am pro-choice, but I am not going to have the tail wag the dog and come up with a theory of personhood that questions the personhood of newborns (or viable pre-borns) in order to quiet whatever ethical qualms I might have about abortion.</p>
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		<title>By: Dianne</title>
		<link>http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225850</link>
		<dc:creator>Dianne</dc:creator>
		<pubDate>Thu, 11 Jan 2007 16:02:27 +0000</pubDate>
		<guid isPermaLink="false">http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225850</guid>
		<description>&lt;i&gt;I don’t think there is a meaningful difference in the cognitive ability of a baby a day before birth and a day after birth. &lt;/i&gt;

Actually, there probably is. A fetus, even a fetus one day before birth, exists in a low oxygen environment. The cerebral cortex doesn't work so well in a low oxygen environment. If you put an adult in an unpressurized airplane at 30,000 feet they will loose conciousness very rapidly. So regardless of the fetus' neurological development, the cortex may not be operating yet. Additionally, the uterine environment is low stimulus. The main stimulus a fetus experiences is the sound (quite loud, apparently) of blood rushing through the placenta. It may be dimly aware of light and the amniotic fluid may taste different depending on what the mother ate, but those sensations are quite limited. Compare that to the experiences of a newborn: bright lights, different noises, the faces of its parents and birth attendants, the smell of colostrum (and possibly meconium), etc. Can a conciousness exist in the absence of stimulus? Adults go crazy very quickly if not given adequate stimulus (see poor Jose Padilla, for example). Perhaps fetuses don't go crazy because they do not have the level of awareness that necessiates stimulus and companionship yet.</description>
		<content:encoded><![CDATA[<p><i>I don’t think there is a meaningful difference in the cognitive ability of a baby a day before birth and a day after birth. </i></p>
<p>Actually, there probably is. A fetus, even a fetus one day before birth, exists in a low oxygen environment. The cerebral cortex doesn&#8217;t work so well in a low oxygen environment. If you put an adult in an unpressurized airplane at 30,000 feet they will loose conciousness very rapidly. So regardless of the fetus&#8217; neurological development, the cortex may not be operating yet. Additionally, the uterine environment is low stimulus. The main stimulus a fetus experiences is the sound (quite loud, apparently) of blood rushing through the placenta. It may be dimly aware of light and the amniotic fluid may taste different depending on what the mother ate, but those sensations are quite limited. Compare that to the experiences of a newborn: bright lights, different noises, the faces of its parents and birth attendants, the smell of colostrum (and possibly meconium), etc. Can a conciousness exist in the absence of stimulus? Adults go crazy very quickly if not given adequate stimulus (see poor Jose Padilla, for example). Perhaps fetuses don&#8217;t go crazy because they do not have the level of awareness that necessiates stimulus and companionship yet.</p>
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		<title>By: Dianne</title>
		<link>http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225849</link>
		<dc:creator>Dianne</dc:creator>
		<pubDate>Thu, 11 Jan 2007 15:55:46 +0000</pubDate>
		<guid isPermaLink="false">http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225849</guid>
		<description>&lt;i&gt;It’s not just a question of the possible harms of menstruation, but also the possible harms of undergoing major surgery that will have lifelong ramifications for her body and her life&lt;/i&gt;

That's always the question in medicine: do the benefits of the proposed intervention outweigh the risks of vice versa? In this case, Ashley's parents and her doctors, people who know her and care for her, decided that the benefits outweighed the risks. As far as the hysterectomy is concerned, the main long term problem she is likely to face is abdominal scarring which will make any future abdominal surgeries slightly more difficult. Since (I think) they took the appendix out at the same time, there's a reasonable chance that she'll never need any further abdominal surgeries. Again, I don't know that this was "the" right decision, and probably isn't the best solution possible in the ideal world, but I think it may well have been a right decision for Ashley and her family given the options available.

On the subject of menstral discomfort, are the people who say that menstration is no big deal taking into account the fact that she is essentially immobile? One of the best non-pharmacologic methods of decreasing menstral pain (for me and others I've talked to at least--I haven't seen any formal studies of this) is movement. Frankly, menstation while being unable to move, with or without ibuprofen, sounds hideous to me. But that may be just me.</description>
		<content:encoded><![CDATA[<p><i>It’s not just a question of the possible harms of menstruation, but also the possible harms of undergoing major surgery that will have lifelong ramifications for her body and her life</i></p>
<p>That&#8217;s always the question in medicine: do the benefits of the proposed intervention outweigh the risks of vice versa? In this case, Ashley&#8217;s parents and her doctors, people who know her and care for her, decided that the benefits outweighed the risks. As far as the hysterectomy is concerned, the main long term problem she is likely to face is abdominal scarring which will make any future abdominal surgeries slightly more difficult. Since (I think) they took the appendix out at the same time, there&#8217;s a reasonable chance that she&#8217;ll never need any further abdominal surgeries. Again, I don&#8217;t know that this was &#8220;the&#8221; right decision, and probably isn&#8217;t the best solution possible in the ideal world, but I think it may well have been a right decision for Ashley and her family given the options available.</p>
<p>On the subject of menstral discomfort, are the people who say that menstration is no big deal taking into account the fact that she is essentially immobile? One of the best non-pharmacologic methods of decreasing menstral pain (for me and others I&#8217;ve talked to at least&#8211;I haven&#8217;t seen any formal studies of this) is movement. Frankly, menstation while being unable to move, with or without ibuprofen, sounds hideous to me. But that may be just me.</p>
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		<title>By: Kaethe</title>
		<link>http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225839</link>
		<dc:creator>Kaethe</dc:creator>
		<pubDate>Thu, 11 Jan 2007 14:55:50 +0000</pubDate>
		<guid isPermaLink="false">http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225839</guid>
		<description>&lt;blockquote&gt;I am all for a grand unified personhood theory that makes sense, but every one I have read breaks down somewhere. I don’t think there is a meaningful difference in the cognitive ability of a baby a day before birth and a day after birth. &lt;/blockquote&gt;

It's all slippery slope.

&lt;blockquote&gt;the idea of a 3-month-old’s personhood even being questioned &lt;/blockquote&gt;

I don't understand why &lt;i&gt;questioning&lt;/i&gt; anything would be wrong.  What possible definition can there be of "personhood" that isn't sometimes problematic?</description>
		<content:encoded><![CDATA[<blockquote><p>I am all for a grand unified personhood theory that makes sense, but every one I have read breaks down somewhere. I don’t think there is a meaningful difference in the cognitive ability of a baby a day before birth and a day after birth. </p></blockquote>
<p>It&#8217;s all slippery slope.</p>
<blockquote><p>the idea of a 3-month-old’s personhood even being questioned </p></blockquote>
<p>I don&#8217;t understand why <i>questioning</i> anything would be wrong.  What possible definition can there be of &#8220;personhood&#8221; that isn&#8217;t sometimes problematic?</p>
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		<title>By: outlier</title>
		<link>http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225662</link>
		<dc:creator>outlier</dc:creator>
		<pubDate>Thu, 11 Jan 2007 02:17:20 +0000</pubDate>
		<guid isPermaLink="false">http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225662</guid>
		<description>&#62;It’s the just the likelihood that something might happens that determines whether you prevent it from happening. 

Ack! I meant to write "It's &lt;i&gt;not&lt;/i&gt; just the likelihood..."</description>
		<content:encoded><![CDATA[<p>&gt;It’s the just the likelihood that something might happens that determines whether you prevent it from happening. </p>
<p>Ack! I meant to write &#8220;It&#8217;s <i>not</i> just the likelihood&#8230;&#8221;</p>
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		<title>By: FormerlyLarry</title>
		<link>http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225632</link>
		<dc:creator>FormerlyLarry</dc:creator>
		<pubDate>Thu, 11 Jan 2007 00:04:45 +0000</pubDate>
		<guid isPermaLink="false">http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225632</guid>
		<description>An interesting read although I was dumb founded when someone suggested that a 3 month old didn't have a right to life and further suggesting they were on personhood par with cats or other animals. But then again we do get the occasional story about infants turning up in dumpsters so I guess its not unheard of. 

I am all for a grand unified personhood theory that makes sense, but every one I have read breaks down somewhere. I don't think there is a meaningful difference in the cognitive ability of a baby a day before birth and a day after birth.</description>
		<content:encoded><![CDATA[<p>An interesting read although I was dumb founded when someone suggested that a 3 month old didn&#8217;t have a right to life and further suggesting they were on personhood par with cats or other animals. But then again we do get the occasional story about infants turning up in dumpsters so I guess its not unheard of. </p>
<p>I am all for a grand unified personhood theory that makes sense, but every one I have read breaks down somewhere. I don&#8217;t think there is a meaningful difference in the cognitive ability of a baby a day before birth and a day after birth.</p>
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		<title>By: Myca</title>
		<link>http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225602</link>
		<dc:creator>Myca</dc:creator>
		<pubDate>Wed, 10 Jan 2007 21:29:34 +0000</pubDate>
		<guid isPermaLink="false">http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225602</guid>
		<description>&lt;blockquote&gt;it stands to reason that feeling menstrual pain, even if slight, might bother her more than a normal sibling, who can put it in context and who derives pleasure from many, many other aspects of life and can overlook the discomfort more easily.&lt;/blockquote&gt;

 . . . and who can understand that there's an emotional component to menstruation as part of sexual maturity, and who are able to derive pleasure from their sexuality, and who understand that the pain is temporary . . .</description>
		<content:encoded><![CDATA[<blockquote><p>it stands to reason that feeling menstrual pain, even if slight, might bother her more than a normal sibling, who can put it in context and who derives pleasure from many, many other aspects of life and can overlook the discomfort more easily.</p></blockquote>
<p> . . . and who can understand that there&#8217;s an emotional component to menstruation as part of sexual maturity, and who are able to derive pleasure from their sexuality, and who understand that the pain is temporary . . .</p>
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		<title>By: Suzanne</title>
		<link>http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225601</link>
		<dc:creator>Suzanne</dc:creator>
		<pubDate>Wed, 10 Jan 2007 21:25:35 +0000</pubDate>
		<guid isPermaLink="false">http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225601</guid>
		<description>&#62;&#62;It’s the just the likelihood that something might happens that determines whether you prevent it from happening. It’s also how bad you think the consequences of it happening will be, and the relative benignness of the preventative measure. &#62;&#62;

The only pleasures Ashley really gets in life are sensual (in the sense of -- senses) -- being in a pleasing or comforting visual environment, perhaps smelling familiar smells, listening to familiar voices/music, being warm, fed, comfortable, and free from physical discomfort.  And since whatever subjective happiness she derives is so based on those sensual dimensions, it seems rather important to keep them as stable as possible.  An imperfect analogy, but I bet her family focuses on keeping her out of drafts more so than her siblings - not only because she can't move away from a draft, but because her pleasures are so limited that the least they can do is keep her draft-free.   Being in a draft likely bothers her more than it does a normal sibling - so it stands to reason that feeling menstrual pain, even if slight, might bother her more than a normal sibling, who can put it in context and who derives pleasure from many, many other aspects of life and can overlook the discomfort more easily.</description>
		<content:encoded><![CDATA[<p>&gt;&gt;It’s the just the likelihood that something might happens that determines whether you prevent it from happening. It’s also how bad you think the consequences of it happening will be, and the relative benignness of the preventative measure. &gt;&gt;</p>
<p>The only pleasures Ashley really gets in life are sensual (in the sense of &#8212; senses) &#8212; being in a pleasing or comforting visual environment, perhaps smelling familiar smells, listening to familiar voices/music, being warm, fed, comfortable, and free from physical discomfort.  And since whatever subjective happiness she derives is so based on those sensual dimensions, it seems rather important to keep them as stable as possible.  An imperfect analogy, but I bet her family focuses on keeping her out of drafts more so than her siblings - not only because she can&#8217;t move away from a draft, but because her pleasures are so limited that the least they can do is keep her draft-free.   Being in a draft likely bothers her more than it does a normal sibling - so it stands to reason that feeling menstrual pain, even if slight, might bother her more than a normal sibling, who can put it in context and who derives pleasure from many, many other aspects of life and can overlook the discomfort more easily.</p>
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		<title>By: Kaethe</title>
		<link>http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225597</link>
		<dc:creator>Kaethe</dc:creator>
		<pubDate>Wed, 10 Jan 2007 20:53:56 +0000</pubDate>
		<guid isPermaLink="false">http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225597</guid>
		<description>Ashley's parents not particularly old, but they stipulate that sometimes she is looked after by (at least one of) her grandmother(s), and that the stunting will enable the grandmother to care for her longer.</description>
		<content:encoded><![CDATA[<p>Ashley&#8217;s parents not particularly old, but they stipulate that sometimes she is looked after by (at least one of) her grandmother(s), and that the stunting will enable the grandmother to care for her longer.</p>
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		<title>By: outlier</title>
		<link>http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225571</link>
		<dc:creator>outlier</dc:creator>
		<pubDate>Wed, 10 Jan 2007 20:09:14 +0000</pubDate>
		<guid isPermaLink="false">http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225571</guid>
		<description>&#62;Second of all, I didn’t say that menstruation couldn’t cause pain. I’m simply addressing the assumption that it will.

It's the just the &lt;i&gt;likelihood&lt;/i&gt; that something might happens that determines whether you prevent it from happening. It's also &lt;i&gt;how bad&lt;/i&gt; you think the consequences of it happening will be, and the relative benignness of the preventative measure. 

If you know that menstruation can be Very Very Bad, then  a hysterectomy might not seem so radical.

Ah, but all the cool kids are talking about autonomy and personhood...</description>
		<content:encoded><![CDATA[<p>&gt;Second of all, I didn’t say that menstruation couldn’t cause pain. I’m simply addressing the assumption that it will.</p>
<p>It&#8217;s the just the <i>likelihood</i> that something might happens that determines whether you prevent it from happening. It&#8217;s also <i>how bad</i> you think the consequences of it happening will be, and the relative benignness of the preventative measure. </p>
<p>If you know that menstruation can be Very Very Bad, then  a hysterectomy might not seem so radical.</p>
<p>Ah, but all the cool kids are talking about autonomy and personhood&#8230;</p>
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		<title>By: hp</title>
		<link>http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225559</link>
		<dc:creator>hp</dc:creator>
		<pubDate>Wed, 10 Jan 2007 19:05:15 +0000</pubDate>
		<guid isPermaLink="false">http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225559</guid>
		<description>As one of those who stated that my living will probably wouldn't let me get to the point of Ashley's disability--I was not saying that Ashley would be better off dead. 

People have pointed out that comparing Ashley to a "3 month old" is inaccurate--because despite perhaps having those limitations, she's a "3 month old" with 9 years living experience.  

For an adult to be put into a situation like Ashley's would also be different. You'd be dealing with an adult with however many years experience living a "normal" life, experiencing a extreme situation which takes away their physical and mental abilities. It's not the same as Ashley's situation, and cannot be the same as Ashley's situation. That adult is being deprived of abilities which pre-existed, while Ashley never  had those abilities and thus cannot be deprived of them.

Maybe this should be a call for those of us with living wills to look at them and make sure we understand what they are saying. I've already been through this with my father--he underwent surgery around the time of the Terri situation, and he and his doctors made sure that WE (him, his family) understood what his living will actually meant.  Many living wills will come into effect in situations less extreme than Terri's; situations that might leave us like Ashley.

I am comfortable with that. We hear about the "miracle" survivals and recoveries, but there is a reporting bias there. We don't hear about all those who don't have miracle recoveries. 

I, personally, am against many extreme medical procedures. If I ended up in a situation where a transplant was required, I would probably not go forward with it. That does not mean that I think that others shouldn't--if someone else is comfortable with that type of medical intervention, that's their choice. 

And, ironically, I am a stated organ donor.

As for Ashley: it appears that she enjoys the life she has, that her treatment will allow her to continue to enjoy that life as she has.  And I think that's wonderful.</description>
		<content:encoded><![CDATA[<p>As one of those who stated that my living will probably wouldn&#8217;t let me get to the point of Ashley&#8217;s disability&#8211;I was not saying that Ashley would be better off dead. </p>
<p>People have pointed out that comparing Ashley to a &#8220;3 month old&#8221; is inaccurate&#8211;because despite perhaps having those limitations, she&#8217;s a &#8220;3 month old&#8221; with 9 years living experience.  </p>
<p>For an adult to be put into a situation like Ashley&#8217;s would also be different. You&#8217;d be dealing with an adult with however many years experience living a &#8220;normal&#8221; life, experiencing a extreme situation which takes away their physical and mental abilities. It&#8217;s not the same as Ashley&#8217;s situation, and cannot be the same as Ashley&#8217;s situation. That adult is being deprived of abilities which pre-existed, while Ashley never  had those abilities and thus cannot be deprived of them.</p>
<p>Maybe this should be a call for those of us with living wills to look at them and make sure we understand what they are saying. I&#8217;ve already been through this with my father&#8211;he underwent surgery around the time of the Terri situation, and he and his doctors made sure that WE (him, his family) understood what his living will actually meant.  Many living wills will come into effect in situations less extreme than Terri&#8217;s; situations that might leave us like Ashley.</p>
<p>I am comfortable with that. We hear about the &#8220;miracle&#8221; survivals and recoveries, but there is a reporting bias there. We don&#8217;t hear about all those who don&#8217;t have miracle recoveries. </p>
<p>I, personally, am against many extreme medical procedures. If I ended up in a situation where a transplant was required, I would probably not go forward with it. That does not mean that I think that others shouldn&#8217;t&#8211;if someone else is comfortable with that type of medical intervention, that&#8217;s their choice. </p>
<p>And, ironically, I am a stated organ donor.</p>
<p>As for Ashley: it appears that she enjoys the life she has, that her treatment will allow her to continue to enjoy that life as she has.  And I think that&#8217;s wonderful.</p>
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		<title>By: Suzanne</title>
		<link>http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225539</link>
		<dc:creator>Suzanne</dc:creator>
		<pubDate>Wed, 10 Jan 2007 17:55:34 +0000</pubDate>
		<guid isPermaLink="false">http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225539</guid>
		<description>Myca:  I agree with your statement that there's nothing special or sacred about sex organs aside from their function and use.  As a woman who is through with childbearing, I have about as little attachment to my uterus as I do to my tonsils or appendix.  It could be gone tomorrow and why would I care?</description>
		<content:encoded><![CDATA[<p>Myca:  I agree with your statement that there&#8217;s nothing special or sacred about sex organs aside from their function and use.  As a woman who is through with childbearing, I have about as little attachment to my uterus as I do to my tonsils or appendix.  It could be gone tomorrow and why would I care?</p>
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		<title>By: Suzanne</title>
		<link>http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225537</link>
		<dc:creator>Suzanne</dc:creator>
		<pubDate>Wed, 10 Jan 2007 17:53:34 +0000</pubDate>
		<guid isPermaLink="false">http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225537</guid>
		<description>Dianne:  Ashley's parents are "typical" late-thirties / early to mid-forties and she has two siblings, a brother and a sister, who are close in age to her, per the pictures on the family's website.  There is nothing to suggest that the parents aren't in good health.    
I agree with your slippery slope.  Ashley's parents could also issue a DNR order if she were to fall ill and it wouldn't be the subject of multiple blogs -- no one would know.</description>
		<content:encoded><![CDATA[<p>Dianne:  Ashley&#8217;s parents are &#8220;typical&#8221; late-thirties / early to mid-forties and she has two siblings, a brother and a sister, who are close in age to her, per the pictures on the family&#8217;s website.  There is nothing to suggest that the parents aren&#8217;t in good health.<br />
I agree with your slippery slope.  Ashley&#8217;s parents could also issue a DNR order if she were to fall ill and it wouldn&#8217;t be the subject of multiple blogs &#8212; no one would know.</p>
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		<title>By: Ampersand</title>
		<link>http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225530</link>
		<dc:creator>Ampersand</dc:creator>
		<pubDate>Wed, 10 Jan 2007 17:19:24 +0000</pubDate>
		<guid isPermaLink="false">http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225530</guid>
		<description>&lt;blockquote&gt;The point of the pro-choice argument isn’t dependency. It’s a special kind of dependency that exists almost exclusively in the case of fetuses.&lt;/blockquote&gt;

I understand the distinction. I even agree with it. But I don't understand why you seemingly believe that the distinction you're making is completely immune from other people reinterpreting it and slippery slopes. Making any kind of dependency a moral factor brings up the possibility of a slippery slope, as far as I can tell.

&lt;blockquote&gt;You know, it’s funny you mention this, because as Michael Berube has pointed out, arguments about the non-personhood of women and black people were rooted very definitely about ideas about the relationship between cognition and moral status. There was, of course, ample evidence that white men were smarter than everyone else. Literacy rates, success in business, art and the sciences… all sorts of indicators bore this out. And when people like Mary Wollstonecraft and later Frederick Douglass argued that this achievement gap was rooted in culture, not biology, they were laughed out of the room by folks armed with the best scientific evidence, which used all sorts of measurements and statistics to prove that women and Africans just weren’t as well-endowed in the brain department as white men were.&lt;/blockquote&gt;

And how did that turn out, in the long run? Would you say that the widespread consensus nowadays is that blacks and women have no personhood at all? Obviously not; although racism and misogyny remain widespread problems, in the long run the views of Wollstonecraft and Douglas won the cultural debate. No one except KKK-style extremists nowadays would argue that blacks and women are unable to think and therefore have no human rights, and even racist politicians nontheless favor legal equality between the races and the sexes. [*]

The idea that intelligence and personhood are related did not cause racism or sexism to come about. Rather, racists and sexists used these concepts in a post hoc manner to justify their already existing biases. 

(They also used the concept of dependence quite a lot, by the way; slaves were said to depend on their masters for survival and civilizing, and because of that dependence couldn't be freed. And the pernicious ways dependence was used to keep wives in their place are, I trust, too well-known to require me to go over them.)

Historically, ideas can be used for good or ill. That a warped misrepresentation of an idea has been used for ill, does not prove that the idea is wrong.

([*]I don't deny that there are still people, like the authors of &lt;i&gt;The Bell Curve&lt;/i&gt;, who argue that blacks and/or women are less intelligent than white men, but they don't argue that therefore rights should be taken away from blacks and women.)</description>
		<content:encoded><![CDATA[<blockquote><p>The point of the pro-choice argument isn’t dependency. It’s a special kind of dependency that exists almost exclusively in the case of fetuses.</p></blockquote>
<p>I understand the distinction. I even agree with it. But I don&#8217;t understand why you seemingly believe that the distinction you&#8217;re making is completely immune from other people reinterpreting it and slippery slopes. Making any kind of dependency a moral factor brings up the possibility of a slippery slope, as far as I can tell.</p>
<blockquote><p>You know, it’s funny you mention this, because as Michael Berube has pointed out, arguments about the non-personhood of women and black people were rooted very definitely about ideas about the relationship between cognition and moral status. There was, of course, ample evidence that white men were smarter than everyone else. Literacy rates, success in business, art and the sciences… all sorts of indicators bore this out. And when people like Mary Wollstonecraft and later Frederick Douglass argued that this achievement gap was rooted in culture, not biology, they were laughed out of the room by folks armed with the best scientific evidence, which used all sorts of measurements and statistics to prove that women and Africans just weren’t as well-endowed in the brain department as white men were.</p></blockquote>
<p>And how did that turn out, in the long run? Would you say that the widespread consensus nowadays is that blacks and women have no personhood at all? Obviously not; although racism and misogyny remain widespread problems, in the long run the views of Wollstonecraft and Douglas won the cultural debate. No one except KKK-style extremists nowadays would argue that blacks and women are unable to think and therefore have no human rights, and even racist politicians nontheless favor legal equality between the races and the sexes. [*]</p>
<p>The idea that intelligence and personhood are related did not cause racism or sexism to come about. Rather, racists and sexists used these concepts in a post hoc manner to justify their already existing biases. </p>
<p>(They also used the concept of dependence quite a lot, by the way; slaves were said to depend on their masters for survival and civilizing, and because of that dependence couldn&#8217;t be freed. And the pernicious ways dependence was used to keep wives in their place are, I trust, too well-known to require me to go over them.)</p>
<p>Historically, ideas can be used for good or ill. That a warped misrepresentation of an idea has been used for ill, does not prove that the idea is wrong.</p>
<p>([*]I don&#8217;t deny that there are still people, like the authors of <i>The Bell Curve</i>, who argue that blacks and/or women are less intelligent than white men, but they don&#8217;t argue that therefore rights should be taken away from blacks and women.)</p>
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		<title>By: Dianne</title>
		<link>http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225529</link>
		<dc:creator>Dianne</dc:creator>
		<pubDate>Wed, 10 Jan 2007 17:16:53 +0000</pubDate>
		<guid isPermaLink="false">http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225529</guid>
		<description>I was going to stop posting to myself, really I was, but then I saw that someone had brought up (non-human) great apes. So I had to add one more bit...There is a test for self-awareness called the "rouge test." In this test, an animal's body (usually its face) is marked with a colorful substance and the animal is shown a mirror. A "positive" test is one in which the animal examines the mark on its face and indicates that it understands that the mark is on itself (ie rubs the mark on its own face, not on the mirror, does not react to the image in the mirror as it would to another of its own gender and species, etc.) Great apes, including humans, pass this test. So do dolphins and elephants. One elephant, after checking out the mark, went on to examine her teeth and remove bits of gunk that had built up in them. In other words, she had sensory integration. If that's not self awareness then what is? For whatever the information might add to the already confusing debate;-)</description>
		<content:encoded><![CDATA[<p>I was going to stop posting to myself, really I was, but then I saw that someone had brought up (non-human) great apes. So I had to add one more bit&#8230;There is a test for self-awareness called the &#8220;rouge test.&#8221; In this test, an animal&#8217;s body (usually its face) is marked with a colorful substance and the animal is shown a mirror. A &#8220;positive&#8221; test is one in which the animal examines the mark on its face and indicates that it understands that the mark is on itself (ie rubs the mark on its own face, not on the mirror, does not react to the image in the mirror as it would to another of its own gender and species, etc.) Great apes, including humans, pass this test. So do dolphins and elephants. One elephant, after checking out the mark, went on to examine her teeth and remove bits of gunk that had built up in them. In other words, she had sensory integration. If that&#8217;s not self awareness then what is? For whatever the information might add to the already confusing debate;-)</p>
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		<title>By: Myca</title>
		<link>http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225528</link>
		<dc:creator>Myca</dc:creator>
		<pubDate>Wed, 10 Jan 2007 17:13:00 +0000</pubDate>
		<guid isPermaLink="false">http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225528</guid>
		<description>Also, if we do want to talk about 'what would you want if it were you' and 'the gendered nature' of this, let me be really clear.

If it were me, and my primary pleasure in life was being held and carried by my parents . . . and I had testicles that I would &lt;i&gt;never&lt;/i&gt; use (and &lt;i&gt;could&lt;/i&gt; never use ethically). . . I would give them up in a quick damn minute to preserve my happiness. 

Just as I would give up my tonsils or my appendix.

There's nothing special or sacred about my sex organs aside from their function and the use to which they are put.</description>
		<content:encoded><![CDATA[<p>Also, if we do want to talk about &#8216;what would you want if it were you&#8217; and &#8216;the gendered nature&#8217; of this, let me be really clear.</p>
<p>If it were me, and my primary pleasure in life was being held and carried by my parents . . . and I had testicles that I would <i>never</i> use (and <i>could</i> never use ethically). . . I would give them up in a quick damn minute to preserve my happiness. </p>
<p>Just as I would give up my tonsils or my appendix.</p>
<p>There&#8217;s nothing special or sacred about my sex organs aside from their function and the use to which they are put.</p>
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		<title>By: Dianne</title>
		<link>http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225527</link>
		<dc:creator>Dianne</dc:creator>
		<pubDate>Wed, 10 Jan 2007 17:08:53 +0000</pubDate>
		<guid isPermaLink="false">http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225527</guid>
		<description>bean: I may be wrong about this, but I have the idea that Ashley's parents are relatively old and that she has no siblings or other close relatives. So it is highly likely that she will at some point need to go into an institution. Furthermore, she might be temporarily outside of her parents' care because of respite care, hospitalization for illness, etc. She can't resist sexual assault and can't even say what has happened to her if it does. I agree that people who work in nursing homes and hospitals ought to be subject to close scrutiny to make sure that they are very, very unlikely to be the sort of people who would rape a helpless child, but nursing home attendants are paid squat for terrible working conditions so getting only the best, most moral people to work under those conditions is difficult. Some people work in nursing homes and other institutions because they genuinely want to help people, don't mind the (literally) shit, and so on. But not all. Again, how will leaving her vunerable to pregnancy make her or anyone else less likely to be raped?</description>
		<content:encoded><![CDATA[<p>bean: I may be wrong about this, but I have the idea that Ashley&#8217;s parents are relatively old and that she has no siblings or other close relatives. So it is highly likely that she will at some point need to go into an institution. Furthermore, she might be temporarily outside of her parents&#8217; care because of respite care, hospitalization for illness, etc. She can&#8217;t resist sexual assault and can&#8217;t even say what has happened to her if it does. I agree that people who work in nursing homes and hospitals ought to be subject to close scrutiny to make sure that they are very, very unlikely to be the sort of people who would rape a helpless child, but nursing home attendants are paid squat for terrible working conditions so getting only the best, most moral people to work under those conditions is difficult. Some people work in nursing homes and other institutions because they genuinely want to help people, don&#8217;t mind the (literally) shit, and so on. But not all. Again, how will leaving her vunerable to pregnancy make her or anyone else less likely to be raped?</p>
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		<title>By: Dianne</title>
		<link>http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225523</link>
		<dc:creator>Dianne</dc:creator>
		<pubDate>Wed, 10 Jan 2007 17:01:47 +0000</pubDate>
		<guid isPermaLink="false">http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225523</guid>
		<description>&lt;i&gt;And also, we’re not just talking about Ashley here. We’re talking about “the Ashley treatment,” a treatment which is being held out as a model for “pillow angels” everywhere. Her parents’ website makes it clear that they expect mastectomy to be a routine part of that treatment&lt;/i&gt;

I completely agree that expanding the "Ashley treatment" to standard of care for all severely brain damaged children is  inappropriate. It may be right for some children, but it certainly isn't for all or most cases and the decision needs to be made on a case by case basis and only after careful consideration and evaluation of the situation. As an option, it is fine. As the option, it is terrible.

&lt;i&gt;Speaking as a woman with really big boobs, I’d really like to talk about whether there’s a way to design harnesses and other assistive technology for women with large breasts, since I may someday need them and would prefer not to have my boobs removed&lt;/i&gt;

Me too. But AFAIK, there isn't any such device and it wouldn't make the development of such a device any more likely if Ashley kept her breasts. She'd just be among those suffering for its lack.</description>
		<content:encoded><![CDATA[<p><i>And also, we’re not just talking about Ashley here. We’re talking about “the Ashley treatment,” a treatment which is being held out as a model for “pillow angels” everywhere. Her parents’ website makes it clear that they expect mastectomy to be a routine part of that treatment</i></p>
<p>I completely agree that expanding the &#8220;Ashley treatment&#8221; to standard of care for all severely brain damaged children is  inappropriate. It may be right for some children, but it certainly isn&#8217;t for all or most cases and the decision needs to be made on a case by case basis and only after careful consideration and evaluation of the situation. As an option, it is fine. As the option, it is terrible.</p>
<p><i>Speaking as a woman with really big boobs, I’d really like to talk about whether there’s a way to design harnesses and other assistive technology for women with large breasts, since I may someday need them and would prefer not to have my boobs removed</i></p>
<p>Me too. But AFAIK, there isn&#8217;t any such device and it wouldn&#8217;t make the development of such a device any more likely if Ashley kept her breasts. She&#8217;d just be among those suffering for its lack.</p>
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		<title>By: Dianne</title>
		<link>http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225522</link>
		<dc:creator>Dianne</dc:creator>
		<pubDate>Wed, 10 Jan 2007 16:50:58 +0000</pubDate>
		<guid isPermaLink="false">http://www.amptoons.com/blog/archives/2007/01/08/ashleys-case-and-id-rather-be-dead/#comment-225522</guid>
		<description>One point about the whole euthenasia/human rights question. Not sure what anyone will make of it. What do you think would have happened if Ashley's parents had, when they knew her diagnosis and prognosis, had said "we don't want any extraordinary measures taken, let her just die naturally in our arms"? The answer: she would have died in their arms, without a feeding tube but with her uterus and breast buds.  And you would never have heard of the case. It happens relatively frequently and without much controversy. Certainly without multiple blogs discussing it. No one (well, few people) call parents who decide to give their critically ill infant comfort care only criminals and they rarely feel obliged to set up web sites explaining/justifying/rationalizing (depending on how you feel about their actions) their decisions. Not sure what that means, except that, really, I don't think that there's a slippery slope issue here. We've already slid far further than that, if it is a slide. Which is not to say that this isn't an ethical problem in its own right, just that, IMHO, the phrase "slippery slope" isn't apropos.</description>
		<content:encoded><![CDATA[<p>One point about the whole euthenasia/human rights question. Not sure what anyone will make of it. What do you think would have happened if Ashley&#8217;s parents had, when they knew her diagnosis and prognosis, had said &#8220;we don&#8217;t want any extraordinary measures taken, let her just die naturally in our arms&#8221;? The answer: she would have died in their arms, without a feeding tube but with her uterus and breast buds.  And you would never have heard of the case. It happens relatively frequently and without much controversy. Certainly without multiple blogs discussing it. No one (well, few people) call parents who decide to give their critically ill infant comfort care only criminals and they rarely feel obliged to set up web sites explaining/justifying/rationalizing (depending on how you feel about their actions) their decisions. Not sure what that means, except that, really, I don&#8217;t think that there&#8217;s a slippery slope issue here. We&#8217;ve already slid far further than that, if it is a slide. Which is not to say that this isn&#8217;t an ethical problem in its own right, just that, IMHO, the phrase &#8220;slippery slope&#8221; isn&#8217;t apropos.</p>
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